Denver mom tries to make terminal 4-year-old son’s last days count

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DENVER -- It's an age-old saying: You can't judge a book by its cover. It's a prejudice amazing mom Kylee Krohn has dealt with for a while now.

“I have tattoos, I have piercings and I get judged on a constant basis,” Kylee said. “I want to show people that I’m a good mom and I’m a good nurse to my son.”

Kylee is serving as a nurse because right after her son Draven was born, he was diagnosed with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital heart defect in which the left ventricle of the heart is severely underdeveloped. It occurs in approximately 1 in 4,000 births.

“They told us he had low odds of making it his first week, and that we had a 50 percent chance that he'd make it to six months old” Kylee said.

Now at 4 year old, Draven beaten those early odds. But his prognosis remains terminal. With that being the case, Kylee has dedicated her life to helping her son make the most of his.

“We can't say what tomorrow brings,” Kylee said. “We can’t promise that he'll have a future. But we can make today special. We don’t take any minute for granted.”

Kyle has started the Draven's Bucket List Facebook page to document all his firsts. From horseback rides, to feeding giraffes to Rockies games, Kylee is making sure Draven’s last days are his best.

But that's not all she's doing.

Kylee also runs three chapters of the non-profit The Modified Dolls. It's a group of alternative women who may look a little different but have a common goal of raising money for various charities.

"It's all about demolishing the negative stereotypes associated with being a modified woman by doing charity work," Kylee said. We talk about being 'The Different making a Difference.'"

So go ahead and judge Kylee by her cover. But if you take the time to crack that cover and read the book, you'll be privy to a story about one amazing mom.

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