7-year-old is a star during address about rare diseases at State Capitol

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DENVER -- According to Colorado Rare, one in 10 people living in the state has some sort of rare disease.

On Wednesday, a handful of parents and advocates brought their concerns of the needs of families battling rare diseases to the State Capitol.

The star of the day was 7-year-old Lily, who is battling Hypermobile Ehlers-Danlos syndrome.

To kick off the day, Lily addressed a group of citizens inside the Capitol.

The group said the hope is to increase ways to bring families who feel alone together.

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