WESTMINSTER, Colo. -- A baby girl from Westminster diagnosed with a rare condition causing her to have dozens of seizures each day is defying all odds.
Janey and Eric Handmacher knew something was wrong with their daughter, Melody, around the time she was 5 months old.
The girl showed symptoms of having a rare disorder known as Aicardi syndrome. The neurological disorder can affect toddlers, making them suffer from multiple seizures a day.
“She would have clusters of spasms,” said Janey Handmacher, Melody’s mother. “Hundreds of seizures a day."
Doctors told the Handmachers their daughter might never walk, crawl or talk. Regular medications weren’t working, so they tried something different: Hemp oil created by "Charlotte’s Web."
“We’re absolutely convinced 'Charlotte’s Webb' is why she’s not having spasms right now,” Janey Handmacher said.
By August 2015, the seizures had stopped. The Handmachers credit the hemp oil, but they said something else played a role: Eric’s guitar playing. The moment he started playing some tunes around his daughter, something changed in Melody.
“It would bring her back. It was like her connection, her anchor to reality almost,” Eric Handmacher said.
The baby girl, who doctors said would likely never crawl or walk again, was jumping around, crawling and dancing the moment dad strummed his guitar’s strings.
“Whenever I play the music it brought her back mentally to pre-episodes,” Eric Handmacher said.
Who knows what Melody’s future holds, but for now, her parents are thrilled with her progress. At this point, they’re going to focus on Melody’s speech. They’re hopeful she’ll overcome that obstacle as well.
You can follow Melody’s Journey on their Facebook page.AlertMe