Pueblo child without brain dies after 3 years of defying odds

Nickolas Coke for featured

Nickolas Coke was born only with a brain stem. After defying the odds for 3 years, he died on Halloween. (Photo: Facebook)

Nickolas Coke was born only with a brain stem. After defying the odds for 3 years, he died on Halloween. (Photo: Facebook)

PUEBLO, Colo. — A miracle child who defied medical odds is being remembered in Pueblo after he passed Oct. 31. Nickolas Coke was born without a brain, and survived until he was three years old, living a remarkable life that surpassed expectations.

T.V. station KOAA first reported the news, recalling Nickolas’ well-documented and rare condition called anencephaly. It means he was only born with a brain stem. Most infants with this condition die shortly after birth.

Nickolas woke up on the morning of his death with breathing troubles. He eventually stopped breathing. Doctors attempted CPR but were unable to revive him.

Instead of counting the days until the youngster’s death, his family tried to celebrate each one.

“He was our hero because he showed the strength. If I can do this, anything can be done” his mother, Sheena Coke, told KOAA, “He taught us everything, he taught the love, how to be family. He taught us everything.”

Last month Nickolas became an older brother to Jace Nickolas James, named in honor of his miraculous brother. Some of the final pictures of Nickolas show him goofing around at a pumpkin patch.

“He was laughing because he thought it was funny that we couldn’t get him to stay still enough to roll off the pumpkins,” His grandmother, Sherri Kohut told KOAA.

The family would like to give special thanks to Sangre de Cristo Hospice, which has been by their side for Nickolas’ entire life.


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